Tuesday, April 24, 2012

LIFE AT 60 - BE A DREAM MAKER

Well today was supposed to be a day for treatment #3.  As it turns out my blood platelets were too low for the chemo so we are waiting another week.  :(  Kinda bummed, but it is what it is.  It is hard to get psyched up, then find out they are not going to do the treatment.  The also pushes back the end game.  I will now have a PET scan on the 14th of May instead of the 7th, and radiation wont start till the week of the 21st.  That pushes the end of this surreal journey to sometime in July.  NOT what I planned, but I should have known that it is NOT about my plans but Gods.  Ive known this from the very beginning, but sometimes we just like to plan things our way.  (Here is the place for the "Gibb's head slap!)  LOL  I just "think" I have too much to do to be bound by a "treatment" schedule.  I should know better!  Guess I just need a bit more patience!

Im actually feeling really good, just down a bit mentally.  I guess this 4th week will be a blessing in disguise as I will undoubtably feel even better.  I just wish the cooler weather and rain was not in the forecast!  :)  Someone told me a bit ago, that Gods timing is really all that counts, so we will go with that.  For those who have not seen me lately, you might not recognize me.  NO hair.  NO mustache.  Been told I look much younger.  So with that thought in mind, I dont care if the hair comes back or not.  LOL  ONLY one problem, my head gets COLD!  We like to keep our bedroom cool at night, usually with the window open, so Renita found me a light weight skull cap to use at night.  It is actually for bikers to wear in the cooler weather under their helmets, but it works perfect for keeping my head warm.  LOVE it!

I actually have borrowed this title from something I saw the other day.  Be a DREAM MAKER, not a DREAM BREAKER!  What does that mean.  Well, Ive been on both sides of this thought.  Ive tried most all the time to be an encourager, or a "Dream Maker", but sometimes I fail and become a "Dream Breaker".  A Dream Maker is someone who encourages, who allows someone to realize their dreams.  Who makes it possible for people to succeed, and encourages them along the way to follow that dream.  Someone who allows God to show them the way to help others.  How often have all of us done things "our" thinking we were doing the right thing, but it did not work out that way.  We became "Dream Breakers"  A Dream Breaker is someone who is negative most of the time, does not allow someone to realize their dreams, and when they hear about someones dreams, the do everything they can to NOT allow them to become reality.  How many times have any of us done that.  I know I have.  Maybe not intentionally, but we are having a bad day, and it just comes out!  All those negative thoughts just explode out of your mouth and before you can stop it, you have shattered someones feelings.  OH MY, I shudder to think about how many times Ive done that.  In fact I used to pride myself of being able to really "tell someone off", man how I wish I could take some of that back.  You can NEVER take back words like that.  It is like trying to un-ring a bell, cant be done.  THANKFULLY we have God to forgive us and help us make things right, and to help us along the way so we hopefully wont go that direction again.

I encourage you to really think of the consequences of your tongue.  It is often times just plain embarrassing to hear yourself.  :)  PLEASE keep in mind, Im talking about myself here.

Remember be a DREAM MAKER.  Encourage someone today.  Even if it is just a friendly HI going into or out of a store to a stranger.  Send an email to someone who has been on your mind.  Send a friendly Face Book post to someone you have not seen or heard from in some time.  You never know who you might touch in THEIR time of need.  That friendly HI, might be all they need to keep them going for the day or week.  Its amazing the little things that God can use.  Stay encouraged yourself.  Remember that God loves you, and CARES about you.  For those of you who do not believe that, think about this.  If he cares about the birds of the air, how much more would he care for you?  TONS!  Just remember that, when you get down.  I had to remember that today, even as I was writing this, I had to remember that God loves me and cares for me, and so what if the treatment goes into July, its just a few weeks later.  NO big deal.  We will go on vacation in the fall.  I was reminded the other day that an installation Ive been waiting to hear about is delayed and that delay may well be so I can be able to do it.  (IF that is the case I feel bad because their job is delayed.  :))  God's way is not always our way, but it is ALWAYS the perfect way!

Tuesday, April 10, 2012

LIFE AT 60 - 2ND ROUND DAY 8

I was debating writing tonight or another night and decided that I probably ought to do it tonight.  Got some things on my mind, so why not?  :)

Well it has been 6 days since the Neulasta shot, and PRAISE GOD NO ill effects.  As you all know since i wrote about it, we tried a couple of new things for this round.  Last time if you recall, I had horrible side effects from the shot, and was absolutely miserable for about a week.  This time we started using Claritin and Motrin about 3 days before the "anticipated" shot date, however we also changed that to a day later.  It all seems to have worked because this time NO PAIN!  YAY!  I dont know what worked the best, but obviously any or all of what we tried worked.  SO my thought is that if any of you are going thru what I am and have issues with the Neulasta, give these a try!

One thing that I do know for certain.  The nodes in my neck are almost totally gone as far as feeling them, and Im assuming that the thing on my voice box is about gone as well.  This is all awesome news. Im pumped!  :)

I had decided several weeks ago that I was going to sing in the Easter Choir at church, if there was going to be one.  While I had several people say maybe I should not sing, or for me to not get my hopes up about being able to sing, or just plain rest, there was a choir and I did sing!  I sang on Friday night for the Good Friday service, and then practiced on Saturday for 2 hours, then sang in 2 services on Sunday!  The upshot of all this is I had NO ill effects from this.  My voice is fine, and in fact feels better that it has felt in months.  I did not have quite my whole normal range, but it was all good, and what I had got a good workout!  LOL!  Why is this significant?  Because this "tumor thing" is on my voice box, supposedly keeping me from doing such things.  I've said many times, I NOT giving the "c" word ANY credence and will continue to do so.  My healing was bought and paid for on the cross when Jesus died and took on that healing by His stripes.  (Isaiah 53:4-5)  Now it is just a matter of the Dr's saying so.  YES I will continue treatments, but I KNOW beyond a shadow of a doubt that I am healed.

I've had several people tell me to expect this or that as far as the treatments go.  In all honesty, I've been tired, had some "GI" issues LOL, but really this time around nothing else.  The 1st round was kinda skewed because I got the flu on top of everything else!  So in my humble opinion Im blessed!  Kinda hard to believe that I would say that, but honestly I feel that way.  I could be a whole lot worse than I am and Im not!  Could use some extra energy, but that will come!  Bike riding season is upon us and I will eventually get out and ride!  Probably not 20 miles 1st few rides, but I'll get there!

Have a blessed day!

Sunday, April 8, 2012

LIFE AT 60 - BOX 256

Well let me start by saying that this is probably a bit different than the other blogs I have written.  I'll get to the title later.  1st, let me go over a few things.  If you recall, I talked about trying some different things to counteract the effects of the Neulasta shot.  THOSE seem to be working.  We waited an extra day, started Claritin, and Motrin.  Not sure if all or one things has helped but it has.  Pretty much no pain from it.  PRAISE GOD for that!!!  2nd of all once again pretty much no ill effects from the chemo, with the exception of fatigue!  That seems to be a very common thing and while frustrating, if that is the worst, I can deal with that.  LOL  In addition, I sang with the Easter Choir on Friday night and 2 services today.  WOW God is so good and merciful.  Absolutely no ill effects from singing.  Amazing what God will do when you praise him.  My voice, while in my body, belongs to God and I will praise Him with it.

OK now to the title of this blog.  I will admit that it is really strange, and honestly not one I would have picked, but you see, I did not pick it.  God did!  After a rather fitful sleep last night, this whole writing was given to me.  I know that someone out there beside me, needs to read this.  God dealt very specifically with me and was specific that I should be writing this with this title.  Often times when I think of something in the middle of the night, I dont remember much the next morning.  This time is the exception to that.

I have no idea why the number 256 is important, except to say that it is apparently my number.  You see we all have "boxes" in our lives where we keep "things".  Be they good, bad, or indifferent.  We have areas categorized, it is just how our brains work.  Often times we bury things deep in our memory and just forget it.  However, I believe that God is wanting to move in lives and wants our complete attention. He wants us to know him in a much deeper way and with a deeper commitment.  Please forgive me if this sounds too "preachy" or something that offends, Im just giving what I got.  :)

Lets look at this for a minute.  While we all have these boxes and we have buried them in the deep recesses of our minds, we KNOW what they contain.  Like I said, could be things we have done that were not quite right, things we said that offended or hurt, could even be some good things but we just put it away because it was part of a hurt.  I know in my case this box has a lot of things I would really just as soon not remember.  While God told me that I dont have to open this box, I do have to throw it away.  What is past is past!  THANK YOU JESUS for the mercy and grace he gives us.  Ive heard Pastors, and visiting speakers talk about "imagining" that you are throwing a hurt away, and letting God take it on himself.  I've heard Pastors talk about imagining "nailing" something to the cross, especially at this time of year.  While all of these are good ideas, what Im talking about takes all those ideas to a much higher level.  This is a level of trust that goes so far beyond that.  This takes us to a level of trust in God that He is wanting from us.

Like I said, I dont know why my "box" is 256.  Maybe it just happens to be in that part of my brain.  I just know that it is there and that the secrets it contains belongs to God.  Yours might be 75, or 100 or any number or it might not even have a number.  Like I said, all of us has this hidden box.  You do not have to open it and find all those hurts again.  What you have to do is just turn them over to God and let his mercy cover them.  Let God have that box,you dont need it anyway.  It is just there cluttering up the space.  :)  I know that what God has put in the past is past, and we have to move on from this day and keep God in the forefront of out lives and let Him lead us.  I know that for some of you out there that might know know Jesus in a personal way, what Im saying is probably very strange, but trust me, it is very real, and should you want to know more about Jesus, I would be happy to tell you more.

Tuesday, April 3, 2012

LIFE AT 60 - 2ND ROUND

Just saw the Dr.  Answered a few questions I had, now Im all hooked up for the next couple of hours.  LOL  Very nice nurses and they dont seem to mind my kidding them.  Looks like I have one more chemo after this one, then 35 treatments of radiation.  THAT Im not looking forward to.  The radiation from everything Ive been told is the most "damaging" to my throat, voice, etc.  I know that God is protecting me and I know that no permanent harm will come to me.  THANKFULLY I still have my voice and am able to sing and will be doing that this weekend in choir for Easter.  Dr said I will probably temporarily lose my voice during radiation.  HOWEVER Im just believing that all will be good and that everything will go according to Gods plan.

The Dr also said to wait an extra day or 2 to get the Neulasta shot.  That apparently helps with the bone and joint pain.  SO I will come in on Thursday and see what happens!  AHHH the new journeys one travels when going thru treatments.  LOL

Took a Benedryl pill this time as they were out of IV for it.  Now I have a bag of nausea medicine going in, THEN I get the poison!  Actually it really is toxic, but the body is able to withstand it.  Our bodies are pretty amazing all things considered.  We can withstand pretty much anything and take a pretty good hit of chemicals to fight disease.  The radiation is toxic, the chemicals are toxic, pretty much everything done to treat the C word is toxic.  BUT they have over an 85% cure rate doing what they do.  That is way better than it used to be.

I had a friend on Sunday ask me if I "knew" how many people are praying for me.  In all honesty I had to say no.  I really dont.  I know it is a lot, but an actual number is beyond my comprehension.  I know there are total strangers praying, all because they were asked to.  A lady at church, who I dont know, heard my name and said she had been praying.  Gods Kingdom is pretty amazing.  It seems that we are all family, just because we serve a very big God.  One thing I do know for certain, is that life is different.  Basically a whole new outlook.  Ive noticed myself looking at things a lot different.  Noticing the trees, grass, flowers.  (EVEN if they do make me sneeze)  LOL  Ive also taken notice of people and their situations.  Ive noticed children that have cancer and see how they handle it, and it blows me away.  Pound for pound, they probably take a bigger hit of the drugs than I do, yet they handle their situation far better.

I have to admit, there were days over the last couple of weeks, I just wanted to quit.  I guess it was getting a virus on top of treatments, and on top of pain, etc.  HOWEVER I have several friends that either message me on face book or text me just to see how Im doing and to say "hang in there" or "Im praying"  Those little notes mean so very much.  I have a wife who has been there every step of the way and has encouraged me and pulled me thru some very dark hours.  Im believing that I will be virus free this time and things will be much better.  The chemo really was not that bad, so getting the shot a day later and "pre-treating" with Claritin, and Motrin, I should be good.  LOL

It looks like the weather is going to cool down a bit later this week, maybe I can get out and ride my bicycle a mile or 2.  (actually would like to get 10 miles in for a couple of days.)

Well they just started the Taxotere, the bad cells are running for their lives!!!  This stuff is like RAID is to ants.  The Carboplatin is next, I guess I get my fill of "carbs" today!  The drag is the Taxotere also affects my taste buds, so even water tastes funny!  OH WELL the price of being beautiful and healthy!  Beautiful because I figure in about a week or so, I should be totally bald, and you know they say bald is beautiful!!! LOL  If things go according to plan, I should be about done with this mess by my birthday in mid June.  Gonna P A R T Y!!!!  Actually I think Renita and I will take a vacation somewhere fun!

I really hope that my blogs are uplifting and helpful to those of you out there that read them and need a lift physically, mentally, spiritually.  I go thru the same ups and downs as others with this wretched disease, I just look to God for help when I need it, and believe me, that is a constant cry for help.  :)  HE is always faithful.

Sunday, April 1, 2012

LIFE AT 60 - DAY 20 AFTER CHEMO

Well it has been several days since I last updated everything.  Ive almost come to the conclusion that the treatments are a conspiracy.  Just about the time you start feeling half human again, it starts all over.  Well at least that is the way it seems.  This week, aside from being kinda tired, I felt almost normal.  Well IT starts over again on Tuesday.  Blood tests, chemo, then the blasted Neulasta shot.  HOWEVER we are going to to something proactive on the shot.  We have done some reading and it seems that some people were able to stave off the ill effects of the shot by taking Claritin a couple of days before the shot and then for a few days after.  Gonna try it and see what happens, I'll keep you updated.

The one thing that has happened, and I kinda expected it, was that Im losing my hair.  NOT just the hair on my head, but my mustache!!  I had had that mustache for 40 years!  LOL  However the reports are that I look much younger without it so I guess all is good.  Im not totally bald on top.  I had my hair buzzed, but it is not growing out and it has been reduced to kind of a fuzz.  I really dont mind though.  For those of you who know me, I did not have much to begin with, so it is no big loss.

The last Dr visit was actually pretty encouraging.  Apparently the chemo is working.  There is "significant" shrinkage in the lymph nodes on the side of my neck.  The Dr  was pretty excited, which of course is contagious.  Most of the time, I cant find the problematic nodes so I do know that it is working.  I still have at least one more chemo after this next one.  Then they want to do a full round of radiation, 7 weeks, 5 days a week.  I guess part of me is wondering how much is too much, but another part is just thinking better safe than sorry.  My brain just never shuts off, so it keeps thinking all the time.  That can be bad at times.  LOL  I guess at this point after the 3rd chemo, we will have a chat with the doctors and go from there.  Personally I prefer minimal radiation, especially since it is aimed at my throat, but I know God is in control so Im following HIS lead on all of this.  What these Dr's probably dont realize is that they are being prayed for and that their decisions will all be the correct decisions.

It has been a pretty long tiring week this week.  It all got done, and the auction was yesterday.  Everything is gone, except the house, now we can concentrate on other things.  Unfortunately I was not a lot of help toward the end of this project because of all of the stuff that slowed me down.

IF my calculations are correct sometime around my birthday in June, I should be done with the treatments.  I am looking forward to getting on with life again, really dont like having to just sit around.   I must admit that there are some benefits to just sitting.  You get a chance to just listen to what God has to say.  You get a chance to spend time with your spouse, that you might have otherwise not have had.  That is something I have totally appreciated.  The one real drag is the weekly blood tests.  They are more time consuming than anything.  The power port really takes the difficulty out of that and makes it almost painless, just takes time.

The Dr has been a bit concerned about me losing some weight, but Im not really.  I needed to lose some anyway.  I just did not want to do it by starving.  LOL  Actually Im eating, just not as much.  Taste buds have been weird so nothing tastes right.   Maybe this round wont be as hard on the taste buds and it wont be as bad.

The weather in St. Louis has been awesome lately and it kills me that I have not felt up to getting out on my bicycle.  Im going to try to change that over the next couple of weeks.  I have a goal that I want to do a century ride, (100 miles), this year and to do that I need to train.  Even if I only get 10 miles at a time in that would be good.  Dr says its OK if I feel up to it so we will make that a goal.

God is still working, things are good, and Im going to sing in the Easter Choir at church this next weekend.  I've said this many times during this journey.  I REFUSE to give the C word any credence.  It is a bump in the road, and I know that God is in control of all of this journey.  Stay tuned, I will let you know more on Tuesday.  They are telling me it should only take 2 1/2 hours instead of 3 this time.  HOPE!!   LOL  The recliners are not terribly comfortable.